A Low Key Day.....

Day 1 off the ventilator has gone well. They have been able to turn his oxygen down (he's at 26 - 30% - room air is 21%) as well as his CPAP settings. He is maintaining his oxygen levels well and not dropping his heart rate (always a good thing). Nicholas is even starting to get "chubby chipmunk cheeks," which are very cute. Today, Denise and I were invited to a Family Advisory Council lunch here at Rainbow. The Family Advisory Council looks for ways to improve the "family experience" at Rainbow. We showed up with a typed list of ideas for improvement, as well as things that are really great. The other families looked at us like crazy "over-achievers." The host said they are always looking for people with good typing skills to join the group. We're not looking to get involved in any other long term commitments at Rainbow but would like to think we'd be a good asset to the group :).