A Gamble and a Prayer.....

First, sorry for not making a post last evening. The day got away from us and before we knew it, it was time to head home and we had not signed into the blog. Overall, Nicholas continues to be stable and has even shown modest improvement in his lung status since we started the steroids. They continue to wean his settings and we are making progress towards getting him off of the ventilator. We both knew that starting the steroids was a bit of a gamble, but unfortunately it was our best hope of improving his lungs. We appreciate everyones prayers and good thoughts. Yesterday was a good day for Denise R (and Nicholas) as Denise was able to hold him for over 3 hrs! They both loved it. Nicholas was very relaxed and happy. I'm looking forward to Tuesday, which is my day to hold him :). Nicholas has been pretty fiesty and active (which is great) and even lifted his head and moved it to the complete other side. All good things, but wish he would wait until he was extubated to try these new tricks. He is off of the IV feedings and getting all his nutrition from breastmilk. He really cries (though he doesn't make a sound due to the ET tube) when he is hungry! His feeds are up to 4 ounces a day (he gets about 2 teaspoons every 2 hours) and his weight is now up to 2 lbs. 1 ounce. I won't mention what our weights are up to, but we also eat about every 2 hours! As for the picture in today's post, this is Nicholas's typical one-eyed check as he is Mr. Curious.